Digital infrastructure for the learning health system : the foundation for continuous improvement in health and health care : workshop series summary /
Roundtable on Value & Science-Driven Health Care ; Claudia Grossmann, Brian Powers, and J. Michael McGinnis, rapporteurs and editors ; Institute of Medicine of the National Academies.
Washington, D.C. : National Academies Press, c2011.
xxvi, 308 p. : ill. ; 23 cm.
0309154162 (pbk.), 9780309154161 (pbk.)
More Details
Washington, D.C. : National Academies Press, c2011.
0309154162 (pbk.)
9780309154161 (pbk.)
contents note
Introduction -- Visioning perspectives on the digital health utility -- Technical issues for the digital health infastructure -- Engaging patient and population needs -- Weaving a strong trust fabric -- Stewardship and governance in the learning health system -- Perspectives on innovation -- Fostering the global dimension of the health data trust -- Growing the digital health infrastructure -- Accelerating progress.
catalogue key
Includes bibliographical references.
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This item was reviewed in:
Reference & Research Book News, June 2012
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Description for Bookstore
Like many other industries, health care is increasingly turning to digital information and the use of electronic resources. The Institute of Medicine's Roundtable on Value & Science-Driven Health Care hosted three workshops to explore current efforts and opportunities to accelerate progress in improving health and health care with information technology systems.
Table of Contents
Abbreviations and Acronymsp. xxi
Synopsis and Highlightsp. 1
Introductionp. 53
The Learning Health Systemp. 54
The Digital Health Infrastructurep. 55
About the Digital Infrastructure Meetingsp. 67
Visioning Perspectives on the Digital Health Utilityp. 71
Introductionp. 71
Informed and Empowered Patients: Moving Beyond a Bystander in Carep. 73
Building a Learning Health System Clinicians Will Usep. 78
Improving Quality and Safetyp. 81
Clinical Research in the Information Agep. 85
Integrating the Public Health Perspectivep. 90
Technical Issues for the Digital Health Infrastructurep. 99
Introductionp. 99
Building a Standards and Interoperability Frameworkp. 101
Interoperability for the Learning Health Systemp. 108
Promoting Secure Data Liquidityp. 114
Innovative Approaches to Information Diversityp. 119
Engaging Patient and Population Needsp. 125
Introductionp. 125
Electronic Health Data for High-Value Health Carep. 127
Engaging Individuals in Population Health Monitoringp. 134
Optimizing Chronic Disease Care and Controlp. 138
Targeting Population Health Disparitiesp. 141
Weaving a Strong Trust Fabricp. 149
Introductionp. 149
Demonstrating Value to Secure Trustp. 151
Policies and Practices to Build Public Trustp. 155
HDPAA and a Learning Healthcare Systemp. 157
Building a Secure Learning Health Systemp. 161
Stewardship and Governance in the Learning Health Systemp. 167
Introductionp. 167
Governance Coordination, Needs, and Optionsp. 169
Consistency and Reliability in Reporting for Regulatorsp. 172
Complying with Patient Expectations for Data De-Identificationp. 176
Information Governance in the National Health Service (UK)p. 180
Perspectives on Innovationp. 135
Introductionp. 185
Conceptualizing a U.S. Population Health Recordp. 186
Accelerating Innovation Outside the Private Sectorp. 190
Combinatorial Innovation in Health Information Technologyp. 193
Fostering the Global Dimension of the Health Data Trustp. 197
Introductionp. 197
TRANSFoRm: Translational Medicine and Patient Safety ; in Europep. 198
Healthgrids, the SHARE Project, and Beyondp. 202
A Global Perspective on the Importance of Systematic Data to Drive Improvements in Carep. 211
Informatics and the Future of Infectious Disease Surveillancep. 216
Growing the Digital Health Infrastructurep. 223
Introductionp. 223
Technical Progressp. 225
Knowledge Generation and Usep. 227
Patient and Population Engagementp. 230
Governancep. 231
Common Themes and Principlesp. 233
Accelerating Progressp. 239
Introductionp. 239
Stakeholder Engagementp. 241
Technical Progressp. 241
Infrastructure Usep. 243
Governancep. 244
Opportunities in the Next Stages of Meaningful Usep. 245
Stakeholder Responsibilities and Opportunitiesp. 247
The Learning Health System and the Digital Health Utilityp. 251
Case Studies for the Digital Health Infrastructurep. 255
Example Stakeholder Responsibilities and Opportunitiesp. 277
Summary Overview of Meaningful Use Objectivesp. 279
PCAST Report Recommendationsp. 281
Workshop Agendasp. 285
Workshop Participantsp. 297
Table of Contents provided by Ingram. All Rights Reserved.

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