Children with cancer [electronic resource] : the quality of life /
Christine Eiser.
Mahwah, N.J. : Lawrence Erlbaum Associates, Publishers, c2004.
xviii, 344 p. : ill. ; 24 cm.
080583544X (alk. paper), 9780805835441 (alk. paper)
More Details
Mahwah, N.J. : Lawrence Erlbaum Associates, Publishers, c2004.
080583544X (alk. paper)
9780805835441 (alk. paper)
Licensed for access by U. of T. users.
catalogue key
Includes bibliographical references (p. 295-328) and indexes.
A Look Inside
This item was reviewed in:
SciTech Book News, June 2004
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Main Description
Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration.
Table of Contents
List of Figures and Tablesp. xiii
Acknowledgmentsp. xv
Glossaryp. xvii
Why Write a Book About Children With Cancer?p. 1
Quantity and Quality in Survivalp. 1
The Good Newsp. 1
The Bad Newsp. 1
Research and Clinical Practicep. 3
Implications for Multidisciplinary Workp. 4
Outline of the Bookp. 5
The Holistic Care of the Childp. 9
Pediatric Oncology: A Medical Overviewp. 11
Summaryp. 11
Chronic Conditions Affecting Childrenp. 12
Characteristics of Cancerp. 12
Incidencep. 12
Causesp. 13
Prognosisp. 15
Diagnosisp. 16
Treatmentp. 17
Acute Lymphoblastic Leukemiap. 17
The Long Termp. 19
Relapsep. 19
Palliative Carep. 19
Improvements in Treatment and Survivalp. 19
Introduction of New Treatmentsp. 20
Centralization of Carep. 20
Improved Supportive Carep. 21
Discussionp. 22
A History of Psychosocial Carep. 23
Summaryp. 23
Themes From the Pastp. 24
1950-1970p. 24
1970-1990p. 25
1990 Onwardp. 28
Questions for the Futurep. 29
Theory and Methodp. 31
Summaryp. 31
Quality of Survivalp. 32
Theoryp. 33
The Disability-Stress-Coping Modelp. 34
Appraisal Modelsp. 35
Monitoring-Blunting Modelsp. 36
Cognitive Processing Theoriesp. 38
Distinctions Between Theoretical and Applied Researchp. 39
Measuring Quality of Survivalp. 40
Psychosocial Adjustmentp. 41
Depressionp. 42
Anxietyp. 43
Self-Esteemp. 44
Body Imagep. 44
Copingp. 46
Conclusionsp. 46
Children on Treatmentp. 47
Effects of Chronic Illness on the Childp. 49
Summaryp. 49
Children Are Not Little Adultsp. 49
Infantsp. 51
Childrenp. 52
Adolescentsp. 53
Young Adultsp. 53
Telling the Childp. 54
Children's Knowledge of Cancerp. 55
Children's Understanding of Illnessp. 58
The Psychoanalytic Approachp. 58
Cognitive Approachesp. 59
The Role of Experiencep. 60
Applications to Children With Cancerp. 60
Criticisms of the Cognitive Stage Approachp. 61
Intuitive Theoriesp. 62
The Concept of Lifep. 63
Does Knowledge Help the Child Cope With Cancer?p. 64
Measuring Outcomes: Children Adjusting to Cancerp. 66
Summaryp. 66
Behavior and Adjustmentp. 67
Depressionp. 68
Anxiety and Posttraumatic Stress Disorderp. 70
Body Imagep. 72
Self-Esteemp. 74
Copingp. 74
Conclusionsp. 77
Back to Normal; Impact on Schoolingp. 80
Summaryp. 80
Back to Schoolp. 81
More Than the ABCsp. 81
Attendancep. 82
Children's Behaviorp. 84
Social Behaviorp. 85
Methodological Limitationsp. 88
Interventionsp. 89
For Childrenp. 89
In Schoolp. 89
Out of Schoolp. 91
For Teachersp. 92
Conclusionsp. 95
Learning Difficulties in Children Treated for Leukemiap. 98
Summaryp. 98
Backgroundp. 99
The Assessment of Intelligence--IQ Tests Revisitedp. 101
Evidence for Long-Term Difficulties in Learningp. 102
Specific Neuropsychological Functioningp. 105
Attention and Planningp. 105
Memoryp. 106
Languagep. 107
Moderating Variablesp. 108
Age and Genderp. 108
Can Cognitive Deficits Be Reduced Without
Compromising Survival?p. 110
Reducing the Dose: 2,400 Versus 1,800 Gyp. 110
Irradiation Versus No Irradiation Therapyp. 111
Changes in Function Over Timep. 114
Relationship Between Neuropsychological Functioning and Imagingp. 115
Methodological Issuesp. 115
Implicationsp. 118
The Impact of a CNS Tumor on Children's Learning and Quality of Lifep. 122
Summaryp. 122
Incidence and Classification of CNS Tumorsp. 123
Treatmentp. 123
Learning and Other Outcomesp. 124
Academic and Cognitive Functionp. 125
Limitations of IQ Assessmentsp. 126
Behavioral, Social, and Emotional Adjustmentp. 126
Moderating Variablesp. 127
Methodological Limitationsp. 128
Intervention Workp. 129
Discussionp. 131
The Wider Familyp. 133
The Diagnosis--Parents' Perspectivesp. 135
Summaryp. 135
Learning the Diagnosisp. 137
Decision Makingp. 138
Acceptability of Randomized Clinical Trialsp. 139
Mediating Between Children and Hospital Staffp. 144
Beyond the Diagnosis: The Impact on Parentsp. 147
Summaryp. 147
The Impact on Parentsp. 148
The Incidence of Psychological Distressp. 149
Differences Between Mothers and Fathersp. 150
Responsibilityp. 152
The Experience of Stressp. 152
Management of Stressp. 152
Personality or Demographic Differences in Copingp. 153
Changes in Coping With Timep. 154
Interventionsp. 156
Implications of Parents' Behavior for Children's Adjustmentp. 158
Disease-Specific Activitiesp. 159
Medical Proceduresp. 159
Home-Based Carep. 163
Everyday Situationsp. 163
Limitations of Methodsp. 165
Implicationsp. 167
Brothers and Sistersp. 169
Summaryp. 169
Previous Reviewsp. 172
The Psychological Impact on Siblingsp. 174
Adjustmentp. 174
The Sibling Adaptation to Childhood Cancer Collaborative Study Groupp. 175
Long-Term Effectsp. 176
Predictors of Sibling Adjustmentp. 176
Communicationp. 177
Helping Siblings: Therapies and Interventionsp. 178
Conclusionsp. 179
The Importance of Sibling Relationshipsp. 179
Methodological Issuesp. 180
Increasing the Link Between Research and Provision of Support for Siblingsp. 182
Surviving Childhood Cancerp. 185
Long-Term Consequences of Surviving Childhood Cancerp. 189
Summaryp. 189
"The Child is Father of the Man"--Wordsworth (1888)p. 190
Late Physical Effectsp. 191
Type and Prevalencep. 191
Second Cancersp. 191
Muskuloskeletal Systemp. 192
Bonesp. 192
Eyes, Ears, and Teethp. 192
Cardiopulmonary Systemp. 192
Heartp. 192
Lungsp. 192
Genito-Urinaryp. 192
Kidneysp. 193
Bladderp. 193
Endocrine Systemp. 193
Fertilityp. 193
Nervous Systemp. 193
The Importance of Identifying Late Effectsp. 194
Physicalp. 194
Psychologicalp. 194
Psychological Late Effectsp. 195
Psychological Adjustment in Survivorsp. 195
Differences Between Survivors and Healthy Controlsp. 197
Survivors, Parents, and Teachersp. 198
The Role of Appraisalp. 198
The Relationship Between Psychological Reactions on Diagnosis With Long-Term Adjustmentp. 199
Body Imagep. 200
Social Functioningp. 200
Posttraumatic Stress Disorderp. 202
Lifestyle Indicatorsp. 204
Academic Success and Achievementsp. 206
Employment and Insurancep. 208
Marriagep. 209
Conclusionsp. 209
Lifestyles and Interventionsp. 213
Summaryp. 213
Promoting Good Healthp. 214
Methodological Issuesp. 214
Smoking, Alcohol, and Drug Usep. 215
Exercisep. 216
Interventions to Improve Lifestylesp. 217
Follow-Up Carep. 217
Transfer From Pediatric to Adult Carep. 218
Survivors' Views of Follow-Up Clinicsp. 218
Psychological Interventionsp. 220
What Survivors Need to Knowp. 222
Provision of Late-Effects Clinicsp. 225
Conclusionsp. 226
Physicalp. 227
Emotionalp. 228
Socialp. 228
Education and Employmentp. 228
Long-Term Issues--The Impact on Parentsp. 231
Summaryp. 231
Parents' Views About the Impact of Illness on the Childp. 232
Parents' Long-Term Healthp. 233
Comparisons With Normal Populationsp. 233
Comparisons With On-Treatment Familiesp. 235
Longitudinal Studiesp. 236
Relapsep. 236
Bone Marrow Transplantsp. 236
Terminal Carep. 237
Hospital- or Home-Based Carep. 238
When a Child Diesp. 238
Can We Identify Those Families Who Need Support
After Treatment Ends?p. 239
Interventionsp. 240
Survival and Quality of Lifep. 243
Quality of Lifep. 245
Summaryp. 245
Backgroundp. 246
Definitionsp. 247
Measures of Quality of Lifep. 250
Choicesp. 247
Parent-Completed Measuresp. 252
The Play Performance Scale for Childrenp. 252
The Quality of Well-Being Scalep. 253
Multiattribute Health Status Classification Systemp. 253
The Pediatric Oncology Quality of Life Scalep. 255
The Miami Pediatric Quality of Life Questionnaire: Parent Scalep. 256
Measures for Children and Parentsp. 257
The Pediatric Cancer Quality of Life Inventoryp. 257
The Perceived Illness Experience Scalep. 258
The PEDQOLp. 259
Measures for Survivorsp. 260
The QOL-SCp. 260
Quality of Life Following Bone Marrow Transplantp. 262
Childhood Cancer Stressors Inventory and Children's Adjustment of Cancer Indexp. 262
Characteristics of Measuresp. 263
Purposep. 263
Respondentp. 264
Age Rangesp. 264
Number of Domainsp. 264
Domains Assessedp. 264
Rating Scalesp. 265
Administration Timep. 265
Psychometric Propertiesp. 265
Reliabilityp. 265
Clinical Validityp. 265
Face Validityp. 266
Concurrent Validityp. 266
Sensitivityp. 267
Predictive Validityp. 267
Clinical Implicationsp. 268
Clinical Trialsp. 268
Evaluation of Interventionsp. 269
Treatment Choicesp. 269
Discussionp. 270
Requirements for a Child-Centered Measurep. 270
Conclusionsp. 275
Quality of Life With Cancerp. 275
Evaluation of Current Researchp. 277
Relationships Between Applied and Theoretical Workp. 278
Toward a Model of QOL for Children with Cancerp. 280
Methodp. 285
Measuresp. 286
Samplesp. 287
Control Groupsp. 288
Moderating Variablesp. 289
Clinical Implicationsp. 290
Epiloguep. 293
Referencesp. 295
Author Indexp. 329
Subject Indexp. 341
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