Catalogue


The governance of genetic information [electronic resource] : who decides? /
edited by Heather Widdows and Caroline Mullen.
imprint
Cambridge, UK ; New York : Cambridge University Press, 2009.
description
xi, 235 p. ; 24 cm.
ISBN
0521509912 (hardback : alk. paper), 9780521509916 (hardback : alk. paper)
format(s)
Book
More Details
imprint
Cambridge, UK ; New York : Cambridge University Press, 2009.
isbn
0521509912 (hardback : alk. paper)
9780521509916 (hardback : alk. paper)
restrictions
Licensed for access by U. of T. users.
contents note
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
catalogue key
8363795
 
Includes bibliographical references and index.
A Look Inside
About the Author
Author Affiliation
Heather Widdows is professor of Global Ethics at the University of Birmingham, where she teaches moral Philosophy and bioethics. Caroline Mullen is a research officer at the Centre for European Law and Legal studies, school of Law, University of Leeds.
Summaries
Description for Bookstore
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring.
Main Description
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
Table of Contents
Notes on contributorsp. ix
Prefacep. xi
Introductionp. 1
Problematising governance of genetic informationp. 13
The medium and the message: tissue samples, genetic information and data protection legislationp. 15
Me, myself, I - against narcissism in the governance of genetic informationp. 37
Decisions, consent and expectations of the individualp. 51
Ethical frameworks of governancep. 73
Constructing communal models of governance: collectives of individuals or distinct ethical loci?p. 75
Rights, responsibility and stewardship: beyond consentp. 99
Who decides what? Relational ethics, genetics and well-beingp. 126
Redesigning governancep. 149
Involving publics in biobank governance: moving beyond existing approachesp. 151
Genetic information and public opinionp. 178
Harmonisation and standardisation in ethics and governance: conceptual and practical challengesp. 201
Bibliographyp. 214
Indexp. 229
Table of Contents provided by Ingram. All Rights Reserved.

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