Catalogue


Case studies of existing human tissue repositories [electronic resource] : "best practices" for a biospecimen resource for the genomic and proteomic era /
[edited by] Elisa Eiseman ... [et al.].
imprint
Santa Monica, CA : RAND, 2003.
description
xxxviii, 208 p. : ill.
ISBN
0833035274 (pbk.), 9780833035271 (pbk.)
format(s)
Book
More Details
added author
imprint
Santa Monica, CA : RAND, 2003.
isbn
0833035274 (pbk.)
9780833035271 (pbk.)
restrictions
Licensed for access by U. of T. users.
general note
"MG-120."
"Prepared for the National Cancer Institute and the National Dialogue on Cancer."
catalogue key
11408942
 
Includes bibliographical references (p. 207-208).
A Look Inside
Summaries
Unpaid Annotation
This volume details state-of-the-art techniques for a growing network of human tissue repositories, a network that may lead to significant advances in gene therapy and cancer research. Presenting insights and information from a study of twelve human tissue repositories, the authors identify "best practices" in collection, processing, annotation, storage, privacy, ethical concerns, informed consent, business plans, operations, intellectual property rights, public relations, marketing, and education that would be useful in designing a national biospecimen network.
Unpaid Annotation
This new volume details state-of-the-art techniques for a growing network of human tissue repositories, a network that may lead to significant advances in gene therapy and cancer research. Presenting insights and information from a study of twelve human tissue repositories, the authors identify "best practices" in collection, processing, annotation, storage, privacy, ethical concerns, informed consent, business plans, operations, intellectual property rights, public relations, marketing, and education that would be useful in designing a national biospecimen network.
Table of Contents
Prefacep. iii
The Rand Corporation Quality Assurance Processp. v
Figure and Tablesp. xiii
Summaryp. xv
Acknowledgementsp. xxxi
Abbreviationsp. xxxv
Introductionp. 1
Methodologyp. 7
Biospecimen Collection, Processing, Annotation, Storage, and Distributionp. 27
Bioinformatics and Data Managementp. 84
Consumer/user Needsp. 96
Business Plan and Operationsp. 108
Privacy, Ethical Concerns, and Consent Issuesp. 121
Intellectual Property and Legal Issuesp. 138
Public Relations, Marketing, and Educationp. 146
Findings and Summary of Best Practicesp. 149
Appendix: Interview Instrument for Rand Evaluation of Existing Tissue Resourcesp. 193
Glossaryp. 203
Referencesp. 207
Table of Contents provided by Publisher. All Rights Reserved.

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